Okay, so I’ve always been an overachiever, except for Maths and Science (we’re just not compatible).
But there are certain times and certain things that you don’t want to be one-of-a-kind of…
Murphy has been very busy with me this year and I’ve managed to maintain my sense of humour about things because I’m a big girl, mos. But when he starts messing with precious little newborns (Hopeful Mom’s Precious) I can’t help but get angry and lose my dinges.
When my cardio diagnosed viral cardiomyopathy (inflammation of the heart muscle), once the shock settled in and I asked questions, there were a lot of ‘we dunnos’. If anyone of you have ever had a bloodtest done by Pathcare, you know what the form looks like, right? I had EVERY block on that form ticked (except the illegal drugs) and was tested for alles. And they could not figure out what virus it was that attacked the heart muscle. The best possible way to identify the virus is to take a slice of inefcted heart muscle but that’s too risky if the heart muscle is already in distress. So I’m a bit like someone suffering from Alzheimer’s — this disease of the brain can only be diagnosed after you’re dead (for obvious reasons). Except in my case, my virus can also be identified once my heart is replaced by another (if push comes to shove). Until then, there are lots of unanswered questions and no answers.
Then we move onto my ears… 4 weeks after I leave hospital my hearing suddenly and drastically goes for a ball of poo. Just like that. No warning. No hearing in one ear and limited hearing in the other. Why? GP thinks its one of my meds, cardio says no it’s too low a dose. ENT guy says same virus ‘what got your heart’, Audiologist says ‘how on Earth are you coping with this limited hearing? You should have hearing aids!’
Niiiice. Just what I needed to hear now. ENT puts me on cortisone (YUCK) for ten days and says come see me when the cortisone is finished, hoping that the cortisone will fix what he doesn’t know. I go back after ten days and my hearing has improved slightly but the patterns of my hearing test points to something else. There’s a doo-icky that connects your ear to your brain… and wait for it… in 4 in a 1000 people this doo-icky grows a wart-like device and kills your hearing! I like being 4 in 1000 but not for hearing loss… why not outstanding IQ or something fab like good body fat ratio or summat?!
I now have to have some SPECIAL MRI to have a look at my doo-icky and see if my doo-icky is 4 in 1000. If my doo-icky has warts, then they can zap it off apparently. If not, then this is as good as my hearing will get and I have to go back to ENT guy once a year to check my hearing and make sure it doesn’t deteriorate. End of story and of course lots of unanswered questions too.
Now I know that I have lots to be grateful for but surely I deserve answers to my questions too… Anyhoo, my mantra is I live to see my gorgeous son for another day and I get to hear his sweet voice. All I need at the end of the day.
Here’s to all the ‘overachievers’ out there who have their doctors stumped. We shall overcome.